Elizabeth Jacobson sat down with Aby Kaupang and Matthew Cooperman to discuss their 2018 release of NOS (disorder, not otherwise specified). The book, published by Futurepoem Books, documents the odyssey into a foreign environment of hospitals, doctors, and diagnoses. Terrain.org published an excerpt from the book along with this interview.
Interviewer Elizabeth Jacobson starts the interview with the question about choosing to make the decision to let your child live or die and explains that she grew up in a family where a different choice was made.
Aby responds, “thank you for sharing your story a bit. I hope to hear more. I say that because I care, but also because I wish more people would write/speak about the difficult choices. De-stigmatize uncomfortable realities.”
She and Matthew Cooperman go on to explain how the book started as a private journal of Aby’s and transformed into something completely different. They also talk about how their lives have changed since its publication and what new challenges they face with their daughter who is now thirteen. Check out the full interview here…and maybe prepare a tissue or two.